Welcome!

We are an affiliate of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency based in the Southeast Virginia area.  The purpose of our affiliate is:
  • To help individuals affected by Huntington's disease (HD) and their families through support and services
  • To educate both the public and health care professionals about Huntington's disease 
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease. 
While there is still no cure for HD, today there is more hope than ever that we can beat this disease.  Until then, our volunteers will strive to provide support and sustence to our HD families, knowing that while research provides hope for the future, we must provide care for HD community today.  We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones. 

The Southeast Virginia Affiliate currently meets at the Eastern Virginia Medical School on various Saturday afternoons.  We are actively welcoming new volunteers to join us in furthering our mission to improve the lives of those affected by Huntington's disease. 

Current volunteer needs include organizing committee members for the upcoming Team Hope Walk and general and administrative duties.  Some tasks can be done by computer, remotely.  If you would like to volunteer some of your time please contact:

Nancy Rhodes
Director of Field Development & Operations
Huntington's Disease Society of America
P: 212.242.1968, extension 234
E: ssupers@hdsa.org
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